Loeys-Dietz syndrome (LDS) is a rare genetic aortic and vascular condition that affects the body’s connective tissue. It significantly increases the risk of potentially fatal aortic dissection, up to 250 times higher without proper medical monitoring.

First identified in 2005 by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine, Loeys-Dietz syndrome is a lifelong, incurable condition that can be debilitating and life-threatening. Early diagnosis, specialized monitoring, and appropriate treatment are essential to improving quality of life and extending longevity for those affected.

Individuals living with Loeys-Dietz syndrome may experience a wide range of medical challenges impacting the cardiovascular, musculoskeletal, skin, and gastrointestinal systems. Increased public awareness is critical to ensuring earlier detection, appropriate care, and stronger support for families navigating this diagnosis.

The State of Missouri recognizes the importance of raising awareness about Loeys-Dietz syndrome to support the LDS community and the LDS Foundation in their mission to save and improve lives.

This month, the City of St. John, Missouri, proudly raises awareness to support individuals and families affected by LDS and to honor the Morales Family’s mission to help save lives in memory of Kaitlyn Morales.

Awareness saves lives.